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Need hope: Neuropathy from chemo

Cancer: Managing Symptoms | Last Active: Jun 19 2:11pm | Replies (159)

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I’m just seeing this email now. I had ovarian cancer and endured a six hour surgery. After this surgery I got an autoimmune disease called GBS which affects the nerves as well. So between the chemo and this it was a double reaction to my nerves resulting in severe neuropathy. Because I was in the hospital for so long my feet dropped as well and are irreparable now. I can’t stand or walk alone without my walker. The good thing is I do not have the pain some have. I have severe numbness in my hands and feet and that comes with its own problems. My husband died of dementia on June the sixth so I’m kept busy now settling the estate.
I feel sorry for all those out there suffering from this painful, debilitating disease. I’ve had it now for a little over five years and I’ve accepted the fact that there is no cure for this when a lot of damage has been done to the nerves so I do my best to move on with my life. Really, what is the alternative?

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Replies to "I’m just seeing this email now. I had ovarian cancer and endured a six hour surgery...."

I am so sorry you are having such pain and uncomfort. I have neuropathy, Will be praying for you.

Hi Tessie. First let me say I’m so very sorry for the loss of your husband. You mentioned that he had dementia. That’s such a cruel disease and incredibly difficult for the patient and the entire family. I know it can bring only a small level of comfort to know he’s finally at peace. Knowing what a difficult time this is, my thoughts and prayers are with you and your family.
I’m also sorry to hear you’re in this level of pain with your autoimmune disease. I applaud your tenacity and acceptance. You’re right, we don’t have a lot of alternatives and just have to live the best we can and strive for personal enjoyment out of each day that we’re granted. Sending you a gentle hug.