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ebrown78 avatar

13-year-old daughter with refractory epilepsy

Epilepsy & Seizures | Last Active: Jun 21 9:48am | Replies (20)

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

Hi @jgu
Nice to hear from you again! I'm so happy to know that your MRI showed no brain damage 🙏 – that's wonderful news!
You asked about the MRI that first revealed my small mesial sclerosis in the left hippocampus. I'm sharing the details below:
MRI Technique: Magnetic resonance imaging with multiplanar reconstruction sequences including Sagittal T1-weighted, volumetric FLAIR; Axial T2, diffusion, FLAIR; susceptibility-weighted imaging (SWI); and volumetric T1 with post-gadolinium multiplanar reconstruction; post-gadolinium Coronal T1 with fat suppression.
I know this is full of complex medical terminology that's hard to understand, but this is all the technical information I have available on this MRI.
It's important to remember that not all types of epilepsy show abnormal MRI findings. For example, in temporal lobe epilepsy, cases involving the lateral temporal lobe have completely normal MRIs.
How did your follow-up appointment with your doctor go after getting your test results? Were your exams able to help identify what type of epilepsy you have or pinpoint where your seizures originate?
Chris

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Replies to "Hi @jgu Nice to hear from you again! I'm so happy to know that your MRI..."

Hi Chris,
Thanks so much for the information! I had brain MRI and 72h EEG early this month. My appoint with docotr was reschdule to next month. My doctor did call and told me that the EEG seems normal too :-(. My medication changed from 1000mg per day of Keppra to 2000 mg/day, now 3000mg/day with ER version. It seems my seizures still happens 2-3 times/day (only when I take a nap in the afternoon or when I sleep at night). It has been more than a month and half since I took the medication. I am very frustrated. Just a quick question - you do not have to answer it. Have you consider the surgury options since you know the lesions that cause your seizures? I asked this because I was trying to lay out my options. And you are so knowledgeable! Thanks a lot!

Jgu