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jodev68 avatar

PMR and travel

Polymyalgia Rheumatica (PMR) | Last Active: Sep 4 5:56pm | Replies (35)

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Profile picture for Mike @dadcue

It depends if your concern is more about running out of prednisone while traveling or having a PMR flare while traveling.

Another concern is being immunosuppressed while being treated with prednisone. You might want to take Covid precautions but you can't protect yourself from all infections.

Travelling outside the country isn't advisable. Just don't let your doctor document that it is "against medical advise" because that might void any travel insurance that you might be able to get.

I have had flares, infections and no Prednisone while traveling. None of those situations were good but sometimes travel outside the country is important. My rheumatolgist now prescribes "Prednisone as needed" when I travel but I haven't needed any Prednisone in more than 4 years. I just do my monthly Actemra infusion before I leave and return home in less than 4 weeks to get my next Actemra infusion.

I have a TransPacific cruise to Sydney, Australia coming up in October. No reason to go there except I have never done a TransPacific cruise or been to Australia. I have never crossed the Equator so I also get to see what the southern hemisphere is like.

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Replies to "It depends if your concern is more about running out of prednisone while traveling or having..."

Thank you for your helpful information @dadcue. I’m concerned with having a flare up. My doctor cleared me to travel. If there is an increase in pain he recommended that I increase the prednisone.