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Neuropathy and fibromyalgia unbearable pain
Chronic Pain | Last Active: Jul 2 2:01am | Replies (43)Comment receiving replies
Thank you so much for this detailed response to Jadene and others. I have just begun to try to address worsening pain in my left hip and leg, sciatic nerve, knee joints and lower back muscles. This pain, which is clearly all connected, began to get worse during this past year. Like many others posting here, have had a struggle getting medical personnel to respond appropriately to my pain. I have been to physical therapy, want to start again, had an x-ray, visited an orthopedic surgeon, who clearly just wanted to jump to hip replacement, which I do not want to do except as a last resort. I am going to start a new supplement, and will see if that provides any relief. For some reason, my providers seem very resistant to scheduling an MRI, which might reveal more information about tissue damage. I continue the quest to get back to a more normal, active life. Best wishes to everyone here struggling with chronic pain.
Replies to "Thank you so much for this detailed response to Jadene and others. I have just begun..."
I’ve starting having distonia. Crazy ankle twisting and weird muscle movements in thigh like an electrical thing. Just buzz and whole thigh pulls u
Right along with drilling screws into my toed(feels like)
Neck fusions and severe stenosis
Low back surgery and severe stenosis
Mostly legs at night but during day when neck inflamed more
Too much to go unless interested!”
It’s nights I can’t handle!
Vicki
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@megroberts
I would recommend pushing for an orthopedic spine specialist to get a lumbar spine MRI and the hip specialist to get you an MRI of your hips/pelvis. You could have soft tissue injury/damage. X-ray alone will not show this.
For example, I have spinal stenosis, degenerative disc disease and neurogenic claudication causing all sorts of symptoms from low back to feet. I also have hip/upper thigh pain that did not show a joint issue with X-ray alone but did show I have bilateral gluteal tendinopathy and bilateral partial high grade hamstring tears (not sure how I got this) that is contributing to pain.
Surgery may be required as a last resort but they should try everything conservative at first (PT, pain relievers, cortisone injections, ice/heat/lidocaine pain patches, nerve pain cream, Voltaren gel for inflammation of joints/muscle tissue, etc.). At times, medication for arthritis/nerve pain/depression due to chronic pain can help (like Cymbalta/duloxetine). A psychologist specializing in chronic pain patients can also help.
Do not stop advocating for your best health and quality of life as possible!