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DiscussionRepatha, side effects and what comes next?
Heart & Blood Health | Last Active: 1 day ago | Replies (34)Comment receiving replies
Replies to "Hi @tatiana987 Disclaimer 😀: This may be oversimplified and definitely not complete, and I do not..."
Thanks for your thoughtful reply. I notice no « cycle of symptoms » and I too keep a log, have for 2 years minus a few periods of discouragement where there are lapses in the record keeping. No cycle, but some triggers perhaps and some helpful things.
I know with 1000% certainty that a walk in cool, fresh air helps me feel better and lower my blood pressure. No question there. It may be the only thing that works with consistency.
After starting Repatha, I have had some reactions (dry mouth and eyes at night, thirst) to sugary foods for sure, but more obvious are strong cravings for specific foods (usually shellfish) and strong répulsion to others I used to enjoy (like ice cream). This is new to me and not consistent.
About my history, I have had fainting spells before, about 19 years ago. That was solved by a beta blocker (Metoprolol) and acupuncture (traditional, only 3 sessions with old Chinese guy who laughed at the medical treatment I had received. He said, « You have spent $50,000 trying to fix this problem and I can cure you today. » I will say he was basically right. I was cured for a long time.)
Current problem started perhaps April 2024 with bad fall, due to blackout after hot bath. I began Repatha Sept 2024, took 17 shots two weeks apart and had 13 falling/fainting incidents, the last one, which was mild, half strength I would say, on June 12, 2025. I stopped Repatha on May 21, 2025.
I am somewhat familiar with how scientists determine cause. I had fainting/falling problems before I took Repatha, but when I started Repatha, the frequency and severity and the predictability of the spells changed dramatically. All increased a lot. I lost my driver’s license due to these spells. Disaster for me! I know that in order to believe Repatha is the cause of the spells I need to find a plausible mechanism of action. I need speculation or a hypothesis. My speculation is based on zero medical education, so better educted people might really help me by hypothesizing or speculating.