@bellableu125
Sorry to hear you are suffering for so long.
Here is what AI suggests:
“ I'm really sorry to hear about your struggles. Long COVID, or post-viral syndromes, can be incredibly challenging, and it's understandable to feel frustrated and hopeless after such a long time. Many people in similar situations have shared their experiences, and while recovery can vary widely, there are some common themes and potential paths forward.
Experiences of Others
Gradual Improvement: Some individuals report gradual improvements over time, even after several years. They often emphasize the importance of pacing themselves and listening to their bodies.
Multidisciplinary Approach: Many have found that working with a team of healthcare providers—such as specialists in neurology, cardiology, and rehabilitation—can help address the various symptoms more effectively.
Support Groups: Connecting with others who are experiencing similar challenges can provide emotional support and practical advice. Online forums and local support groups can be valuable resources.
Potential Strategies
Pacing and Energy Management: Learning to manage energy levels and avoid post-exertional malaise (PEM) is crucial. This might involve breaking tasks into smaller, manageable parts and allowing for plenty of rest.
Cognitive Rehabilitation: For issues like brain fog and memory problems, cognitive rehabilitation therapy may help improve cognitive function and coping strategies.
Physical Therapy: If you have POTS and other physical symptoms, a tailored physical therapy program can sometimes help improve symptoms and increase tolerance to activity.
Mental Health Support: Given the anxiety and depression you're experiencing, ongoing mental health support can be beneficial. This might include therapy, medication, or mindfulness practices.
Seeking a Path Forward
Second Opinions: If you're feeling uncertain about your current treatment plan, seeking a second opinion from a specialist in post-viral syndromes or long COVID can provide new insights.
Research and Clinical Trials: Staying informed about new research and potential clinical trials may offer additional options for treatment and recovery.
Conclusion
It's important to hold onto hope, even when progress feels slow. Recovery from long COVID can be unpredictable, and while some people do experience significant improvements after several years, others may find their path to recovery takes different forms. Continue to advocate for yourself and seek out the support you need. You're not alone in this journey, and there are communities and resources available to help you navigate it.”
Thank you so much for your thoughtful response. I just stumbled upon this forum, and I cannot believe how many are still suffering with Long Haul Covid. Of course, I know I am, but to hear from others is very validating. I am seeing a neurologist and cardiologist. I am thankful for their support. I've most definitely learned, to the best of my ability, to pace -- reserving my energy. Some days are easier than others. Trying my best to remain hopeful. I'm approaching the four-year mark so, again, some days are easier than others. Again, Thank you. Blessings to you