← Return to Proton Therapy: any long term side effects? Any regrets?

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@westernflyer

Reference: Proton Radiation
2010 at Loma Linda Hospital for 2.5 months of proton radiation therapy. Gleason 3+3 with localized slow-growth prostate cancer. As I understand it, the number of sessions may depend on the size of the cancer, its location and improvements in targeting the cancerous site.
Proton radiation was initially developed for children with brain cancer. The reason for this option and the investment to build a proton radiation system was that proton was essentially the only option. That was 15 years ago. Most mornings, those of us awaiting to be called had modest conversations. At least 75% or more of the patients I spoke to in the morning were physicians. This reinforced my solo decision to undergo proton radiation. Now, come 2025, PSA began to rise. it appears there may be either a recurrence or "cancer" within the prostate, now subject to proton radiation therapy in 2010. I have had an MRI and PET scan and no real "evidence" of prostate cancer. But, PSA continues to rise. Absolutely no issues physically- everything normal and "operational". Decided just to watch PSA levels and any indication of physical issues. Although, I have TriCare For Life, I have used the VA for treatment. However, at some point, I may seek additional recommendations or perspectives from Mayo in JAX. I am about two (2) hours from Mayo/JAX. For those attempting to decide what options to consider, I would absolutely and without reservation recommend proton radiation. Do your homework and seek out varied comments, recommendations and perspectives to assure your decision is the best option for your prostate issue. RH/Leesburg

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Replies to "Reference: Proton Radiation 2010 at Loma Linda Hospital for 2.5 months of proton radiation therapy. Gleason..."

@westernflyer
On reading your post you mentioned Mayo Jacksonville. Mayo Jacksonville does not have proton radiation treatments for prostate cancer. They are building a new center (cancer) that will open sometime in 2026. That new center will have proton radiation.

May I suggest if you are looking for a second consultation of exceptional treatment centers to contact UFHPTI (University of Florida Heatlh Proton Institute). It was built and has been doing treatments since 2006. 5 upgraded to latest technology gantries and ulta modern facility.

You can type in the name and go on their web site for information. I can also send the information to you if you like on private message. You already know about photon and proton radiation but UFHPTI offers a information packet free with tons of research, comlete informatino on their treatments, and two books (one is Walsh) free in packet.

They are all state employees so salaried. No pressure to come there. I was just there on Tuesday to see my R/O for my two year follow up.

Mayo Jacksonville offers SBRT for prostate radiation treatment and their present center and R/Os are excellent just don't have proton just photon until new center opens in 2026.