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DiscussionI have had Type I Juvenile Diabetes for 56 years.
Diabetes & Endocrine System | Last Active: Jun 21 8:35pm | Replies (17)Comment receiving replies
Replies to "oh hi!! juvenile REAL diabetic since 1971!! yes, still licking, kind of. 68 now and i'm..."
@cicinla hello from one “REAL” diabetic to another. I was diagnosed Type 1 in 1975 when I was 18 years old. (So you have 4 more years than me, but it is not a contest!) I am 68 years old now also. It does become tiresome doesn’t it? But we are still here.
I was particularly interested in your transplant history. I started mine in the reverse of yours. I had a pancreas transplant in 2005. I did this to save my kidneys and my vision. I was considered brittle diabetic and was starting to have diabetic complications such as mild - moderate kidney disease, peripheral & autonomic neuropathy and retinopathy plus hypoglycemic unawareness. My A1C was in the double digits (the worst hit 13). So I had a pancreas transplant. I was not “cured” of diabetes by the transplant (as some people thought would happen) but for the first time since diagnosis the diabetes was controlled. My A1C was 5.3! The hypoglycemic unawareness disappeared. The neuropathy and retinopathy improved. The kidney disease remained stable. That pancreas transplant was like a gift from God or my own personal miracle. It had a really great run for about 11 years before the function started to decline. My providers politely question whether there’s any function at all. But I like to point out that my A1C is still only 6.6 (well controlled) and they are happy with that.
In 2016 my kidney function had declined to stage 4 CKD and I started looking into kidney transplant. I was evaluated and approved for kidney transplant. I hope to find a living kidney donor and be transplanted preemptively before dialysis becomes necessary. I’ve been inactively listed because my eGFR is in the 30’s. In other words I’m too healthy for active listing (less than 20)! I guess this is a nice problem to have.
Back to you. 13 years with no pancreas at all! I’m not sure I follow. You’ve had no pancreas since 2012 or 2013? That is your current situation? You are living proof that it is possible. I understand “old school”. We are the same age and I’m a bit afraid of technology. I’ve got to admit that the high tech devices have been helpful in controlling the diabetes. Perhaps you will consider these when you get too tired of old school. You might be pleasantly surprised and I’m pretty sure you can do it since you’ve already endured 3 transplants. Transplants are not old school!