We been missing in action due to more hospitalizations. We did just get a bit of good news after all of this nightmare my son has gotten every side effect from this glucagonoma PNET!! He was having severe pain and I figured it was his gallbladder. He had an outpatient scan and yes it was. Back to the ED.. another CT scan which caught the bottom of lungs and yes bilateral PE’s. I had begged the physician to put him on a blood thinner after his last admission but deaf ears! He had an echocardiogram which showed his EF at 45% with pericardial fluid, sugars insane!!! The plus part on the CT scan the 8 cm tumor on tail and spleen had decreased by 2 .1 cm! His oncologist said no explanation. He had been given one injection of the octreotide two weeks prior. I’m going with a small miracle! I also have noticed a definite cognitive decline and yes he has that awful skin condition on his face. In the meantime he was put on heparin drip and a per cutaneous drain was placed into his gallbladder. Finally home after 8 days, will now be on blood thinner rest of life. Last week he finally had a Cervical Lymph Node biopsy to obtain the Ki-67 results were shocking! I was ready for more doom and gloom it was < 3%!!!!! The next thing I get was his plasma glucagon level now 87 was 257 back in April!!! Now we see the surgeon in few weeks after getting yet again another CT scan. I think the tide is turning!!!!!