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Replies to "As much as I like your attitude, Kevin, and agree with you on most points, I..."
Prostate Cancer | Last Active: Jun 19 12:57am | Replies (17)
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As much as I like your attitude, Kevin, and agree with you on most points, I differ with respect to who is in charge.
If one cares to, one can doctor shop until they hear exactly what they want to hear. But in reality, if you want to be treated at a top institute like Sloan you have to follow their protocol, not yours.
Of course, you are free to leave and find another equally ranked cancer care hospital, but where we live that might involve a small airplane or a 4 hr car ride.
Estrogen/estradiol is just not that widespread in the US - don’t ask me why - but it’s effective and inexpensive - oh wait, maybe that’s why!!
Phil
Replies to "As much as I like your attitude, Kevin, and agree with you on most points, I..."
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Phil
Understand and no issue.
I did exactly what you say in late 2016, sought a 2nd opinion at the NCCN center here after SRT was a miserable failure. I saw their Director of Urology who was also head of a major North American medical association. Impressive resume, very!
I laid out my clinical history, discussed how if it continues,, it would be likely similar to those in the CHAARTED and STAMPEDE studies. I asked if thought I should do triplet therapy now.
His response, your PSA is increasing, that's the only clinical data you have, I would put you on ADT mono therapy only.
I left, drove the 8 hours to Mayo, Kwon recommended I do triplet therapy after the results of the C11 Choline scan. I was able to do it here.
Game changer.