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Occipital neuralgia

Headache & Migraine | Last Active: 3 days ago | Replies (18)

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@lisalucier

Hi, @kasey7 - welcome to Mayo Clinic Connect. I appreciate your compassion and empathy for @judic0927. Sounds like you've been on a super challenging road yourself, with the TBI from your motorcycle accident leading to migraine and occipital neuralgia.

As long as you are not giving another member medical advice and instead sharing what has worked for you, you are welcome to share the names of medications that have or have not helped you. Here are the community guidelines, if you want to have a look https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/.

kasey7, you talked about arthritis in your neck triggering the ON and migraines, almost daily. How did you find out that this was what was happening? Do you have distinct flare ups of the arthritis in your neck where you know the symptoms of ON and migraine are coming?

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Replies to "Hi, @kasey7 - welcome to Mayo Clinic Connect. I appreciate your compassion and empathy for @judic0927...."

I was diagnosed with arthritis in my neck a few years back and a narrowing of a couple of the facet disc, effectively pinching a nerve, but not narrow enough for surgical intervention. I am in almost daily Migraine, the ON is a couple days a week. Something like a cattle prod sensation jammed in the back of my neck and being electrocuted through my skull and spine, it's horrible. My neck has been extremely painful for several weeks, turning my head from side to side is agony. Then the tightness in my Traps comes, up my neck and then to the side and top of my head; the "Monster" is on the way. My day is over, it happens between 18-22 days a month where I can be completely disabled. Dark, quiet, cold room is my refuge and whatever meds I can take to make it stop. It's been like this for the last 20 years.
I think the hardest part is in knowing what is coming, that's why I call it the "Monster", who comes to rip my head and base of my skull apart. On the days things are "quiet" I am trying to get laundry and ironing done, clean my home, get to the grocery, get prescriptions picked up. It is just survival. Without my current med regimen, I probably would not be here. Thanks for checking in with me. 🙂 Kasey7