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@annie12345

Thank you for your reply its encouraging to hear about your journey.Yes mine are typical nets to I think I may of mentioned that,I will have a look at those posts.It was my consultant who said only 5% of people have lung nets.Thank you so much for all this information I'm very new to all this still learning ..its took me all this time to look for some support as I didn't think I needed it,but it definitely helps to hear other people's stories that are going through the same.

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Replies to "Thank you for your reply its encouraging to hear about your journey.Yes mine are typical nets..."

Annie, I’m with you on wanting to hear from people who have the same conditions because it’s a different perspective than the provider’s point of view. I like to hear real stories especially with the less common disorders. You came to the right place for support.