I have actually been battling left sided scalp and temple pain since fall of 2012. Tried lots of different antidepressants as I have anxiety issues too. Even tried Lyrica. Everything makes the pain worse or starts even more pain that makes my eye and eye socket and the rest of left side hurt worse. Nortriptiline was helping somewhat then went off of it after 6 months as it was causing eye pain and vision changes. Pain flares now I sparingly use iboprofen to settle it down to dull ache. Indomethicin 75mg for bad flare. Neurologist recommended I try to tolerate taking that every day but the PPI bothers my BP and I have concerns about long term use of the Indicin. I am trying out compound now on the facial and temple areas that helps somewhat....just trying to manage best I can.....

Hello Olivia52,

While we wait for other members to chime in, I thought you may be interested in taking a look at the following conversations:

- Migraines, http://mayocl.in/2iUuVwY
- Trigeminal Neuralgia, http://mayocl.in/2jkNUzt

Each conversation addresses various medications, symptoms, and how to deal with pain resulting from a few illnesses that cause severe head pain. These illnesses may not be the cause of your head pain and I recognize that you mentioned finding other members who have used botox not for migraines, but both conversations may offer some similar advice and discussions relevant to what you are experiencing.

Olivia52, have you been diagnosed with a specific cause of your head pain?

@olivia52 hi I am currently looking for others with same medical issues my mom has Atypical facial pain same symptoms you have. She has tried most medications and currently her pain clinic which jas done a terrible job with her care jas reduced her medications. I am curious she has eye pain and vision changes but she is not on the same meds. She is on xanax, Percocet, and Tylenol. She has been on lyrics, gabapentin, tramadol, trazodone fluvoxolen etc. Have you been on anything other than current meds? What is the name of the compound? She says she was able to tolerate pain better when she had lortab and had fewer side effects but no one will listen. Do you feel that way like no one listening?

Hi!
Sorry for jumping in so late.

I had very similar issues like your mom's. One day, a new one popped up; my ears were hurting and I was getting dizzy. I ran to my doctor because it was a Friday and I didn't want to live with an ear 'infection.' My ears were clear. He asked me several strange questions and came up with a diagnosis, TMJ. He sent me to a dentist that specialized in TMJ. My doctor explained that it was a medical problem that is dealt with by a dentist.

It was difficult, but he found me a dentist that specialized in the treatment of TMJ. He explained that the issue probably occurred because of improper alignment from the braces I wore years earlier. My teeth looked good, but the physiology of my mouth was not considered and my jaw was misaligned. He made me a special bite plate that I had to wear 24/7. Without the plate, I could not clench my teeth. Every couple of months he would shave the plate down until my teeth met.

My jaw was realigned and I no longer needed meds or a plate (except at night). All my symptoms were gone.

I don't know if anyone suggested that this might be the problem, but I think if your mom is still suffering, it would be worth a trip to a dentist.

Good luck
Ronnie (GRANDMAr)