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Gastroparesis and lactobacillus probiotic

Digestive Health | Last Active: 13 hours ago | Replies (71)

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@tsch

I do not have gastroparesis. My daughter has it. After multiple trips to ER after vomiting stale stomach contents, she was tested with stomach emptying procedure which confirmed her stomach would not empty on its own. This followed a severe virus and chronic fatigue diagnosis. It may be that a med given to her for chronic fatigue led to damage of vagus nerve which controls stomach emptying. I am surprised you say there is no true definitive diagnosis for gastroparesis. It seems the stomach emptying is pretty definitive. Tardive dyskenisia is a serious side effect of Reglan. I am also not familiar with the enzymes you mention. Are they prescribed by a GI doc? Do they help?

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Replies to "I do not have gastroparesis. My daughter has it. After multiple trips to ER after vomiting..."

The digestive enzymes I'm suggesting are only rx. Here's my backstory so you can see I've been through this all for almost 10 years.

Here is just a bit of my journey and uphill I was facing, until I had the transplant and have all the possible complications and than some. So now unfortunately, am on borrowed time.

It's too much info to explain every event, but I'll try to give a brief synopsis. It all started July 27th 2016. I couldn't sleep at all and was in SERIOUS pain. Ended up having to go to hospital in the early morning hours bc it didn't subside at all. I was admitted and within 18 hours, I was in ICU, on life support, and in a medically induced coma. Doctors were literally betting how long I would stay alive before I passed (This part wasn't a joke, they seriously wore my wife said).

Made it through that and then spent the next 4 years living in hospitals from NJ, to PA, and Columbia. I eventually got a transplant at Columbia for an islet Cell Transplant. They also removed my entire spleen, pancreas, gallbladder, duodenum, 60% of my stomach, and had a wedge section.

Had 8 different feeding tubes, in and out of hospitals, multiple picc lines for tpn, fluids, infusions, coding twice on the OR table and had to be revived. Been on a vent 2 more times after my first time while in the coma. I'm now a brittle diabetic bc of not having a pancreas at all. Further, I can't get an actual pancreas put back in and have them completely rearrange all my internal "plumbing" again, to make everything work again as it would for every other human. I have been on the pancreas transplant list, but as "inactive" due to my respiratory issues (respiratory system failed twice) and mainly due to the 24/7 vomiting on an every day basis. Each day I vomit a minimum of 10 times, and up to over 25 times daily. So, I will not be able to keep the mandatory daily immune suppressants down for a foreign pancreas. I also am a rare match, and the wait is approx 2 years at the fastest.

My now brittle diabetes, lupas, and autoimmune issues are attacking my organs at an unbelievably fast pace. My doctors are saying my body won't make it (My endo said verbatim, "We're very sorry to have to say this, but you are already past the point of no return"), a side note, who the hell words that kind of information/message!?!? My wife and I were like what in the world?

So, I'm already pretty much a person with very limited mobility, malnourished bc I have been throwing up for the last 18 months, and no one can find out why. So in the event I get a miracle and find a pancreas match, I still can't get it bc I throw up everything and won't be able to get my immunosuppressants down for the foreign pancreas.

I've also just got another rt shoulder mri that shows more labrum tears from anterior around to posterior, and bone on bone requiring a full shoulder replacement now (already have had 4 surgeries on this right shoulder) before all this pancreas, etc. happen when I was fighting. Had an acl done for 2nd time. It's now torn again, along with lcl, mcl, and lateral meniscus. I have 7 herniations in my thoracic spine, 3 in my cervical, 1 in my lumbar, need another ankle surgery, a hip replacement, and am going on Wednesday to see how we are going to handle this next shoulder surgery.

There's more, but that should be enough to give you an idea of where I was for the last 9 year's, and what I am still currently managing. We have been talking about my end of life and I'm trying to get everything in line for my cremation, all my finances, belongings, etc. I just don't know how to keep waking up and fight an endless battle that no doctor has an answers on how to help my post surgery complications.