← Return to Big 3 all at same time?
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MAC & Bronchiectasis | Last Active: Aug 1 4:34pm | Replies (39)
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I'm so sorry you had such a frustrating experience with your doc on top of the very worrisome neuropathy! I'm glad it's going better now. My pulmonary doc called me back this morning after I asked the question yesterday afternoon. He said the slightly higher dose of ethambutol (E)--at 1600 mg/day 3X/week, which is just under 30 mg/kg instead of 25mg/kg-- has a better treatment outcome than the lower dose. In his experience the optical side effects are very rare. He said it was up to me, whether or not to lower the dosage. But once I understood his rationale, I chose to go with his recommendation. Hang in there!