1. < Cancer: Managing Symptoms

Need hope: Neuropathy from chemo

Posted by needshope78 @needshope78, Apr 24, 2020

Is there anyone going through neuropathy from chemo. If so how long until my mother will be able to walk again afterwards. It’s been 8 weeks every week gets worse

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clogfwc123charlotte | @clogfwc123charlotte | Sep 29, 2024

So sorry to hear this added burden to your treatment experience. Best of luck to you and thanks for the encouragement. I did get my last treatment yesterday!

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3740 | @3740 | Mar 17 4:32pm

Anyone heard of a Product …. WALKASINS … a Lower Limb Sensory Prosthesis? They’re quite Expensive but the Video shows they work. Currently ONLY AVAILABLE through the VA. Don’t understand this? I’m a Veteran 1962-68 but I don’t qualify to receive Treatment 😳😠😖

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1 reply
3740 | @3740 | Mar 17 4:38pm
In reply to @lastround "I have neuropathy in my hands and feet from chemo treatments I have not tried it..." + (show)
@lastround

I have neuropathy in my hands and feet from chemo treatments I have not tried it but a nurse practitioner suggested trying acupuncture.
In my case the neuropathy got worse after the treatment ended but very slowly subsided to a manageable level.
Good luck

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My Hands are so Bad it’s hard to hold a Spoon or Fork to eat. The just feel Stif all the time. I need to keep exercising them so they won’t freeze up.

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Mentor
John, Volunteer Mentor | @johnbishop | Mar 17 5:24pm
In reply to @3740 "Anyone heard of a Product …. WALKASINS … a Lower Limb Sensory Prosthesis? They’re quite Expensive..." + (show)
@3740

Anyone heard of a Product …. WALKASINS … a Lower Limb Sensory Prosthesis? They’re quite Expensive but the Video shows they work. Currently ONLY AVAILABLE through the VA. Don’t understand this? I’m a Veteran 1962-68 but I don’t qualify to receive Treatment 😳😠😖

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@3740 you can find more information on Walkasins in another discussion here:
--- Peripheral sensory neuropathy - Anyone tried Walkasins?:
https://connect.mayoclinic.org/discussion/peripheral-sensory-neuropathy-device/
@centre has posted experience about the Walkasins and may have more thoughts to share:
Below are links to the posts:
--- https://connect.mayoclinic.org/comment/659859/
--- https://connect.mayoclinic.org/comment/659866/

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jksturgeon3 | @jksturgeon3 | 6 days ago

Coq10 and magnesium for neuropathy?

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | 6 days ago
In reply to @jksturgeon3 "Coq10 and magnesium for neuropathy?" + (show)
@jksturgeon3

Coq10 and magnesium for neuropathy?

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Welcome @jksturgeon3, I take both CoQ10 and magnesium along with other supplements for my neuropathy. I don't have any pain symptoms with my neuropathy but do have the numbness and I mostly take the supplements in hopes of slowing or possibly stopping the progression of my neuropathy. The Foundation for Peripheral Neuropathy has a list of supplements known to help neuropathy in the complementary and alternative therapies document here - https://www.foundationforpn.org/therapies/.

Have you been diagnosed with neuropathy? What symptoms do you have?

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tessie63 | @tessie63 | 5 days ago
In reply to @loribmt "Hi Tessie, oh gosh, I’m sorry you’re having such a rough time with the lingering neuropathy..." + (show)
@loribmt

Hi Tessie, oh gosh, I’m sorry you’re having such a rough time with the lingering neuropathy from chemo. I know you wish you could turn back the clock on your decision to have treatments. Was there an option of you not having chemo for your cancer, with a positive outcome of beating the disease?

I know from experience chemo can be brutal but to be victorious over cancer it has to be stronger than the disease to be able fight it and win. It appears that you’re cancer free? Even though you’re having to use the walker and neuropathy impacts your daily life, I do see your spark of that spirit of endurance that keeps you going every day. And the positive side is that it appears you are in remission. ☺️ May I ask what type of cancer you had? And are you able to take any medications to help with the discomfort of the neuropathy?

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I’m just seeing this email now. I had ovarian cancer and endured a six hour surgery. After this surgery I got an autoimmune disease called GBS which affects the nerves as well. So between the chemo and this it was a double reaction to my nerves resulting in severe neuropathy. Because I was in the hospital for so long my feet dropped as well and are irreparable now. I can’t stand or walk alone without my walker. The good thing is I do not have the pain some have. I have severe numbness in my hands and feet and that comes with its own problems. My husband died of dementia on June the sixth so I’m kept busy now settling the estate.
I feel sorry for all those out there suffering from this painful, debilitating disease. I’ve had it now for a little over five years and I’ve accepted the fact that there is no cure for this when a lot of damage has been done to the nerves so I do my best to move on with my life. Really, what is the alternative?

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2 replies
faybe | @faybe | 4 days ago
In reply to @tessie63 "I’m just seeing this email now. I had ovarian cancer and endured a six hour surgery...." + (show)
@tessie63

I’m just seeing this email now. I had ovarian cancer and endured a six hour surgery. After this surgery I got an autoimmune disease called GBS which affects the nerves as well. So between the chemo and this it was a double reaction to my nerves resulting in severe neuropathy. Because I was in the hospital for so long my feet dropped as well and are irreparable now. I can’t stand or walk alone without my walker. The good thing is I do not have the pain some have. I have severe numbness in my hands and feet and that comes with its own problems. My husband died of dementia on June the sixth so I’m kept busy now settling the estate.
I feel sorry for all those out there suffering from this painful, debilitating disease. I’ve had it now for a little over five years and I’ve accepted the fact that there is no cure for this when a lot of damage has been done to the nerves so I do my best to move on with my life. Really, what is the alternative?

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I am so sorry you are having such pain and uncomfort. I have neuropathy, Will be praying for you.

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Mentor
Lori, Volunteer Mentor | @loribmt | 4 days ago
In reply to @tessie63 "I’m just seeing this email now. I had ovarian cancer and endured a six hour surgery...." + (show)
@tessie63

I’m just seeing this email now. I had ovarian cancer and endured a six hour surgery. After this surgery I got an autoimmune disease called GBS which affects the nerves as well. So between the chemo and this it was a double reaction to my nerves resulting in severe neuropathy. Because I was in the hospital for so long my feet dropped as well and are irreparable now. I can’t stand or walk alone without my walker. The good thing is I do not have the pain some have. I have severe numbness in my hands and feet and that comes with its own problems. My husband died of dementia on June the sixth so I’m kept busy now settling the estate.
I feel sorry for all those out there suffering from this painful, debilitating disease. I’ve had it now for a little over five years and I’ve accepted the fact that there is no cure for this when a lot of damage has been done to the nerves so I do my best to move on with my life. Really, what is the alternative?

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Hi Tessie. First let me say I’m so very sorry for the loss of your husband. You mentioned that he had dementia. That’s such a cruel disease and incredibly difficult for the patient and the entire family. I know it can bring only a small level of comfort to know he’s finally at peace. Knowing what a difficult time this is, my thoughts and prayers are with you and your family.
I’m also sorry to hear you’re in this level of pain with your autoimmune disease. I applaud your tenacity and acceptance. You’re right, we don’t have a lot of alternatives and just have to live the best we can and strive for personal enjoyment out of each day that we’re granted. Sending you a gentle hug.

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