1. < Neuroendocrine Tumors (NETs)

Help understand interval progression

Posted by susan481 @susan481, Jun 12 10:36pm

First scan after 4 lanreotide monthly shots for pancreatic net grade 2 stage 4 w liver (both lobes) metastases.

Advice on understanding interval progression and also impact of tumors on veins? (Seeing doctor Monday)

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

susan481 | @susan481 | 5 days ago
In reply to @tomrennie "That's awesome. How do you folks feel about it? Any initial concerns?" + (show)
@tomrennie

That's awesome. How do you folks feel about it? Any initial concerns?

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Mixed blessing. Lanreotide not doing its job …

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susan481 | @susan481 | 5 days ago
In reply to @hopeful33250 "Hello @susan481, I see that you have already received a lot of helpful posts from @tomrennie..." + (show)
@hopeful33250

Hello @susan481,

I see that you have already received a lot of helpful posts from @tomrennie and @lindabees.

Did you have your appointment today? Did you get your questions about the vein involvement answered?

I look forward to hearing from you again. Will you post an update when it is convenient?

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Vein issue explained - but ongoing growth of liver tumor(s) means have to try new approach

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susan481 | @susan481 | 5 days ago

Update for folks who have been so helpful - doctor appointment hard but useful. Lanreotide alone not doing its job (grade 2, stage 4 metastatic to liver, pancreatic origin NET). Moving to PRRT. Liver tumors still growing. Vein involvement not huge deal as have grown a bypass system. Next steps radiology oncologist & new PET dotatate scan then 8 months of PET.

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