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Caregiver for spouse with MCI (Mild cognitive impairment)
Caregivers: Dementia | Last Active: 1 hour ago | Replies (79)Comment receiving replies
I could’ve written this post!
I feel like I live on a deserted island in my own home. All of the effort and energy I expend goes unnoticed and unappreciated. I feel like I live on a hamster wheel.
Ditto regarding the driving issue. He believes that he will get his license back and voices this daily. He’s so angry about how “they” took his driving privileges away. Yes, thank God for that!
I try to get “me” time whenever possible, am exploring meditation to try and save my sanity, and daily wonder how long I will be able to continue to provide care without losing my mind completely.
I really appreciate all of you on Mayo Connect. Like you, never in a million years did I ever think this was going to be our life post retirement.
Replies to "I could’ve written this post! I feel like I live on a deserted island in my..."
I am thankful for your post. My husband won't even surrender his driver's license. Which means he still is on the policy. I feel like going in his wallet and getting it. But ...no telling what he might do or say. He says the the most ugly things. Sometimes I respond and sometimes I leave from his presence. He was awful yesterday. Does your spouse refuse to bathe and acts like he will perish if water touches his skin? He is sometimes an evil version of someone who looks like my spouse but..is not. If I hear one more time he has Parkinsons so he can't help it I will scream. He will get a call on his phone is so nice to them. So go figure. I cook, clean, bathe him, shave and trim his beard, and give him a pedicure when needed. The only person that visits is my best friend. She does not use platitudes. She speaks truthfully to him. He looks at her like I wish I could say what I want. Lol...He never says anything ugly to anyone else but me
I gave him Parkinsons and a number of other conditions he has. He will not do PT when it is ordered. Everything is my fault..PERIOD. I have decided he will not take my spirit away. I know one thing I will never marry again. Been there done it. Most likely I will be gone before him. I am healthy ..but that doesn't guarantee anything. I love my husband and would not wish this for anyone. But the name calling, screaming and outrageous comments is daily. He is a bully and does not appreciate anything. (Verbally). My sanity is intact and I know what to expect ..but that being said this not how I thought I would be spending my golden year's. That is my rant and every bit is true.
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Ditto also, I could have written your post exactly and share your fears. Hugs.
Judi