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Any one with Neuroendocrine tumors getting the shot once a month?

Neuroendocrine Tumors (NETs) | Last Active: 56 minutes ago | Replies (136)
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@annie12345

Thank you for your reply I'm here in UK an there are not many support groups in my area,does your husband have lung nets? I haven't met anyone yet with same as me,apparently only 5% of people have it in the lungs.

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Replies to "Thank you for your reply I'm here in UK an there are not many support groups..."
Teresa, Volunteer Mentor | @hopeful33250 | 4 hours ago

Hello @annie12345,

I am glad that you found this forum. It will help you find support in your journey with lung NETs. Here is a link to many of the Connect discussion groups where lung NETs are mentioned:
https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/?search=Lung&pg=2. I would encourage you to read these posts to discover what other lung NET patients are saying about their diagnosis and treatment. I would especially like to invite @californiazebra to post with you, as she has had lung NETs for many years.

What is the most difficult symptom you are dealing with, @annie12345?

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lindabees | @lindabees | 3 hours ago

No. He has pnets. I know lung nets are a bit of different animal.
In addition to Mayo Connect, there are several Facebook groups dedicated to nets that may be helpful to you, including one strictly for lung nets. These groups have many international patients so perhaps you might find them helpful.

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