Hi @kole03
I hope you’re feeling well post lobectomy.

You need to be followed by a NETs team that would include a thoracic oncologist? Mayo and university hospitals will have one. Some other top hospitals may as well. I had to travel 60 miles to a university hospital because my local oncology team was not familiar with lung NETs or DIPNECH. Now that I’m established, I meet with my team through video calls and they coordinate with my local oncologist I already had for another cancer.

Do you have any respiratory symptoms connected to DIPNECH like coughing, shortness of breath or mucus? How many nodules do you have?

There are a lot of threads on lung NETs and DIPNECH on MayoConnect so you might want to read through all of those and then let us know what questions you still have. I’m glad you’ve been diagnosed and are on the other side of surgery.