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New to ileostomy. Partial gastrectomy,,total colectomy

Ostomy | Last Active: 18 hours ago | Replies (12)

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@gin64

I can only imagine the anguish you must be feeling. I had nowhere near the problems you have and it was only 8 months but it was still very trying, both physically and mentally. I finally got my surgery and so far it looks successful. It's been 6 weeks now. The bright side during my ordeal was I got to skip urgent care and go straight to the ER every time I was about to collapse. Urgent Care wouldn't take me because I was "too complicated". Even having to do separate surgeries, at least it sounds like there's light at the end of your tunnel. You'll come out of it stronger. Keep the faith and don't ever give up!

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Replies to "I can only imagine the anguish you must be feeling. I had nowhere near the problems..."

I'm very frustrated right now. At the beginning of June,my colorectal surgeon was in Portugal. I did everything I could to wait for his return. Now for the past 2 1/2 weeks the nurse is saying that he wants my records from Yale because he feels it would be helpful. I was at Yale from 2018- 2021. I tried to download the records but it was for 54 visits and over 400 pages. I had a places try to I guess compress the files and it still didn't send. I know there is absolutely nothing in those files that can assist the doctor. I went through them on my computer and sent any information that I thought was pertinent through the patient portal. I recieved a very upsetting response from the nurse on how they don't need " tidbits". She was sending for the files and told me to make sure that I was available at all times just incase Yale tried to reach me. That was a week and a half ago. I wrote the nurse this morning. I recieved a response that she would call Yale again. It's been since March 19th that I've been dealing with colitis, Paralyzed bladder,inflamed gallbladder and pancreatitis.Retching constantly from the gastric fibrosis. Still alive. Bedridden at this point and isolated. My hope is pretty much gone. I've stopped talking to my children. They don't need to know.