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← Return to ANA positive for Lupus
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I’ve already had most of the test that you mentioned. My doctor did say my thyroid is within normal limits. I did have the EMG test but they haven’t gotten back to me. My last glucose was 80. Which isn’t too bad. I tested positive for SLE. And my Ck was high as well. I do have all the symptoms for SLE and the connective tissue. My back is really bad. I have thoracic disorder with multiple level degeneration and endcap disorder. They said my bones are bone on bone which hurts really bad. My T9 and T10 is up against my spinal cord. With four bulging disc and the rest is just bone on bone. I am having a MRI on my brain and neck on the 20th of this month. I had a mini stroke where one of my blood vessels collapsed. I’m just a hot mess and I don’t understand how all of this happened all at once it seems like. Oh and thank you for the kind words!! You are right I should be able to enjoy my grandchildren and life. I get so depressed when I’m in pain and see other people my age enjoying life. But you know a lot of people have worse than me. So I just try to keep it all together and not let others see my pain.
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@hunterhadley03 hello, did you end up getting answers?
I was on here looking up lupus because I think I might have a mild version of it and found your thread.
I wanted to mentioned that a lot of your symptoms are similar to what I initially had (minus the low blood count, mine was high, and the blue fingers, which is typically a symptom of a connective tissue disease from what I’ve read)
I was initially diagnosed with celiac disease. Did they run the TGA test for you? I didn’t seem to see that mentioned in your tests above.
Autoimmune diseases typically run in pairs. Which is why I think I might have a mild version of lupus and am always researching.
That being said reading what you said above my thoughts for you is you might benefit from a gluten free diet. Multiple autoimmune disease symptoms subside on a gluten free diet.
It was wild to me when I finally got a diagnosis that after three days of going gluten free I was confident they had finally figured out what my issue was.
Good luck! Don’t be scared! (It’s better to have answers and a solution than to be sick all the time). You’ll get to the bottom of it and once you do a lot of your symptoms should go away!
@hunterhadley03 Lupus diagnosis cannot be made solely with anti-nuclear antibodies. Clinical and laboratory correlation is necessary
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Hi there .... I am 54 with 7 grandies and i totally hear you. I had a spur grow from C6 into my spinal cord and they had to remove it. Bone on Bone in so many places, total hip replacement and a cage in my neck. The only thing i find helps is Palexia Slow release morning and night... and i have fast release on stand by for those days we over do it or travelling etc. Fibromyalgia study shows Neck Trauma can cause your total nervous system to overload... think of it like this if someone else is cold I am freezing.... If someone else is tired I am completley exhausted..... every sensory touch, light, sound, goes crazy. Neuro Autoimmune they say comes from when i had Shingles, i also have lupus so given they all cross over I just throw my hands up in the air and never over do my days and have had to learn to say NO more often ... Wishing you all the best and take care