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Spinal Stimulator removal after nine years: Concerned

Posted by californiabill @californiabill, Dec 24, 2023

Hi, I am considering removing my SCS after about 9 years. I had a new pulse unit installed in 2017 but I am concerned about adhesions when the lead in the dura is removed. It is a Precision Spectra from Boston Scientific so it has a long wire type lead up the inside of the spine in the dural space. Has anyone had one like this removed after a long or short time and did you have any problems?

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lucasmom | @lucasmom | 11 hours ago
In reply to @laurenseavertson "Exercise, is best thing for arachnoiditis. But I'm fused C3 thru my sacrum. Not able to..." + (show)
@laurenseavertson

Exercise, is best thing for arachnoiditis. But I'm fused C3 thru my sacrum. Not able to do a lot. Have to use a walker just for balance. When you are in severe pain, it's difficult to figure out what to do. I can't get to the floor, obviously, can't bend over. I do squats & use 5 lb weights for arms & shoulders. having bowel incontinence. Already have permanent suprapubic catheter & get severe UTI's, drug resistant, requiring 5 days IV antibiotics. I have used cannabis for relaxation & sleep. But now, all of a sudden, weed giving me severe reaction & not sure, i can use anymore. Sometimes, i feel i am losing my mind. I start with a new counselor on January second. I have no support. My spinal nerves are ruined, bowel incontinence is a real trip. being evaluated for pain pump on the 9th. Really don't want it, but DEA, makes it impossible to get decent pain meds. Each of us is very different, depending on where we are, with this disease & other factors. I am only sleeping 4 hours, at the most. Unable to nap, have awful anxiety etc.. My prior education, as an RN, does not really help Does anyone know if we can contact DR Tennant, now that he's retired??? I need some guidance. My DDD , spinal fusions & now Arachnoiditis, have robbed me of 30 plus years. The isolation & lack of support don't help good luck to all with this condition laurenseavertson@q.com

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I have everything you're describing, it can be mentally as difficult as it is physically. Exercise and stretching...LOTS of stretching are the ONLY thing that actually helps when the meds don't seem to work as well. I began taking marijuana for the muscle relaxant effect and for sleep but as with anything, your body gets used to it and it doesn't work so well. I stopped taking it every day and only later at night closer to bed time when I really need .
Whatever you CAN do to move your body and get blood flowing, do it!
A good Physical Therapist can help you learn how to move and work your muscles. As we age everything is only going to get worse, so keep your body strong as possible.

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