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New to ileostomy. Partial gastrectomy,,total colectomy
I'm waiting for 2 surgeons to coordinate partial gastrectomy and total colocectomy with ileostomy. My GI tract hasn't worked since2011. Dealing with constant gastroparesis and my c
Colon Paralyzed in 2018. For 8 years I've managed it with medication but doesn't work anymore. I had what people would consider great Dr's. I was with 2 practices in Connecticut. Danbury and Yale and nobody helped. I discussed removal of the colon and my GI assured me that I wouldn't need an ileostomy since 2016 and here I am. My bladder Paralyzed in 2020 so I self cath. I'm afraid. I have no more choices. The last hospitalization was for stercoral colitis from ischemia,kidneys shutting down,inflamed gallbladder, inflamed common bowel duct, infection, kidney stones 10mm. I don't trust Dr's anymore. Holly1963
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I’m so sorry you’re having to go through so much.
I wish I had an answer for you. Just don't give up. We're rooting for you. Doctors aren't magicians but but sometimes they can perform miracles. We're praying your next surgery will give you what you need.
Thank you! I have 6 children( I guess 5,my 11 year old passed from seizure in his sleep). I wish the Dr's would understand that they need their mother well. I'm asking for the same thing a newborn would do, To be able to sleep, eat pee,and poop. This should be easy to accomplish.
Thank you! I haven't had any surgeries. I'm just passed on to another Dr. Nothing has been resolved in 14 years so at least this Dr. Is trying to rectify the issues. I saw the bariatric oncologist last week and he said that he won't do the surgery at the same time as the colorectal Dr. That means recovering from each separately. I knew he was going to do this. He tried to pass me back to a Dr. I had 10 years ago. It's like being at the DMV...my number is called but they decide to send me back to the end of the line. Last week I had 7 medical appointments. I'm a minister and I pray for everyone is going through this. Sometimes we're giving things in life to better empathize with others that are caught in it.
I can only imagine the anguish you must be feeling. I had nowhere near the problems you have and it was only 8 months but it was still very trying, both physically and mentally. I finally got my surgery and so far it looks successful. It's been 6 weeks now. The bright side during my ordeal was I got to skip urgent care and go straight to the ER every time I was about to collapse. Urgent Care wouldn't take me because I was "too complicated". Even having to do separate surgeries, at least it sounds like there's light at the end of your tunnel. You'll come out of it stronger. Keep the faith and don't ever give up!