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Relief from Radiation Fibrosis Syndrome

Head & Neck Cancer | Last Active: Jun 17 2:03pm | Replies (33)

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Profile picture for lilypilly @lilypilly

Thank you @niml
I do have a speech therapist and she helps a great deal. I also requested to see an oral surgeon to see whT he can do for my tongue if anything.
Swallowing is very difficult but I push like crazy. I can have chunky soups and smoothies. That took a year!!
I also have Lymphedema which has swelling in the throat.
Weekly massage helps this.
What a looooong journey this is.
I wish you all the best and please continue to update the group with your progress.

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Replies to "Thank you @niml I do have a speech therapist and she helps a great deal. I..."

Thank you for sharing. It sure is a long journey. It's nice to know we are not alone out there although I don't wish this to anyone. Hang in there we got this.

Hi lilypilly,

Got this from my PT is to use a compression suit (Flex-Touch by Tactile Medical) for Lymphedema. Here is the link: https://tactilemedical.com/our-lymphedema-solutions/for-head-and-neck/. I currently in process to see if my insurance will cover it.