Help understand interval progression

Posted by susan481 @susan481, Jun 12 10:36pm

First scan after 4 lanreotide monthly shots for pancreatic net grade 2 stage 4 w liver (both lobes) metastases.

Advice on understanding interval progression and also impact of tumors on veins? (Seeing doctor Monday)

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Turkey, Volunteer Mentor | @tomrennie | 6 days ago

In reply to @susan481 "I feel like we have met! Yes you are right. Even ordinary language words seem to..." + (show)

You are welcome. Are you prepared for tomorrow?

susan481 | @susan481 | 6 days ago

In reply to @tomrennie "You are welcome. Are you prepared for tomorrow?" + (show)

Hoping so. We have a list of questions and plans for right after. Many of my questions have to do with the veins…. But I have to try to let my partner lead for herself … thanks again

Turkey, Volunteer Mentor | @tomrennie | 6 days ago

@susan481

You are welcome. Sounds like you are ready. Don't be afraid to admit that you don't understand what the doctor is saying. I told my doc at one point that I had no idea what he was talking about. He asked if drawing me a picture would help. I gladly accepted the offer and asked if he could use words a 6th grader could understand. To my surprise, he said sure. It took about 15 minutes, but I understood what was wrong with my body including the veins being blocked. That made it easier to follow through with his suggested treatment. I still have that picture three years later. Good luck. Please keep me posted ok?

tstern7 | @tstern7 | 6 days ago

In reply to @susan481 "Seems to be the term used when you have growth between scans. . . Appears in..." + (show)

Wow. Interesting. Thanks Susan. Sounds pretty complicated.

susan481 | @susan481 | 6 days ago

In reply to @tomrennie "@susan481 You are welcome. Sounds like you are ready. Don't be afraid to admit that you..." + (show)

Update: on to PRRT …

Turkey, Volunteer Mentor | @tomrennie | 6 days ago

In reply to @susan481 "Update: on to PRRT …" + (show)

That's awesome. How do you folks feel about it? Any initial concerns?

susan481 | @susan481 | 5 days ago

Feeling a bit discouraged as had hoped for better lanreotide effects. However: onward!!

Turkey, Volunteer Mentor | @tomrennie | 5 days ago

In reply to @susan481 "Feeling a bit discouraged as had hoped for better lanreotide effects. However: onward!!" + (show)

I coached sports for a number of years. I always told the kids that the most important play is the next one. You can't change what is already done good or bad. So focus on your next play. Onward it is!!!!