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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 4 days ago | Replies (962)

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@dresikap

Hi, my husband was diagnosed with soft tissue sarcoma recently and it was about 6.5cm in MRI. It is in his gluteus Maximus. Completed with the radiation. Worrying about his surgery since it can affect his walking. Any better solution rather than surgery. Please reply if someone has same or similar experiences or any doctors who can suggest better solution.

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Replies to "Hi, my husband was diagnosed with soft tissue sarcoma recently and it was about 6.5cm in..."

I can appreciate his concern for his walking - I had a 12 x 11.5 x 8 The size of a grapefruit)tumor in my calf - It was removed May 5th - along with the greater portion of my Soleus Muscle - Dr. Goulding was my surgeon. She did a phenomenal job I have progressed from a wheelchair to a walker to an Air Cast to walking with a good orthopedic shoe in 7 weeks - I can tell you that the team at Mayo did everything possible to preserve the integrity of my leg - I did 25 pronto radiation treatments and also participated in a clinical study for Physical Therapy for 5 weeks prior to surgery to strengthen my entire body to ready me for the challenges of not having full use of my leg for awhile - I was told it would be up to 4-6 months before I would be walking again and that would be fully assisted with a walker or cane- so I am thrilled at 7 weeks - the radiation killed off 30% of the tumor but the only option was surgery.