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Christine T.  avatar

Preliminary diagnosis of PN

Neuropathy | Last Active: Jun 16 5:59pm | Replies (14)

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Profile picture for arcuri24 @arcuri24

Ray--you have a truly professorial tone--that is a compliment. Just to share, I do not seem to have any balance issues and I also experience little pain other than the occasional rope-burn feeling in my arms--and that comes and goes. I was unhinged by my muscle loss and I am trying to rebuild myself in p.t. One of my podiatrists did have me in for a circulation study and I was off the normal mark by 2 points--good enough. Doctors can be quite dismissive. The old bedside manner is gone with the wind.

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Replies to "Ray--you have a truly professorial tone--that is a compliment. Just to share, I do not seem..."

Good morning, arcuri24 (@arcuri24)

A professorial tone? Egad! 🙂 That must be because of my email (which I know I mustn't include here) which has an .edu extension. People often ask me if I was a professor. Fat chance! I was employed by the university in Boulder and that's why I have an .edu email, but not as a professor bt as an actor and administrator with the Colorado Shakespeare Festival.

Me, too: I'm trying to rebuild a debilitating amount of muscle loss in my legs, thanks far less to my PN and almost entirely to my sepsis, which had me bed-bound and recliner-bound for too, too long. I was working with a series of at-home PT's until my 2024 Medicare said, OK, Ray, that's it for this year. I've now got coverage again but am having a devil of a time finding a PT who's got experience working with people with PN. I'm still looking however.

A few pf my doctors have seemed dismissive. Some, I came to realize, came across as dismissive simply because they didn't know and hadn't yet learned there's value in saying, "I just don't know."

Cheers!
Ray (@ray666