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Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: 3 hours ago | Replies (1145)Comment receiving replies
I have idiopathic peripheral neuropathy. It started approximately 5 yrs ago. It is not hereditary, I have not had any injuries or damaged my feet in any way. My feet hurt 24/7 with numbness, feet on fire, feet feel frozen, shooting shock pains, etc. My neurologist has prescribed gabapentin and Tramadol. The medicine does help decrease the severity of my pain by 30-40%. The symptoms are now affecting my ability to walk, keep my balance, and stand for any period of time.
I’ve tried everything - vitamins, red light therapy, oils, creams, etc. This neuropathy has severely impacted my daily activities and my life.
I’ve read these comments but does anyone have something that will decrease the pain?
Replies to "I have idiopathic peripheral neuropathy. It started approximately 5 yrs ago. It is not hereditary, I..."
Welcome @jancnkc, I wish there was a one stop answer that worked for everyone with the pain from neuropathy but I'm not sure it exists. Best thing that can help those of us with neuropathy is to become a better advocate for ourselves by learning as much as we can about the condition and what treatments are available that may provide some form of relief. A good starting point is the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/therapies/.
You might also want to scan through the many discussions and comments from members on "neuropathy burning feet" - https://connect.mayoclinic.org/search/?search=neuropathy+burning+feet,
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I have all the same symptoms as you.
I was on Gabapentin for years and it did nothing.
I was also on all different meds over the past 10 years with no relief.
Went to pain management and they put me on Tramadol 25 mg twice a day,if needed.
That helps my hurting feet ,but I can only have 2 a day, so I take them in the evening and before bed.
They’re afraid I’ll become addicted if I take more than that and it’s become a hassle honestly to get my prescriptions filled.
I recently broke my fibula and my tibia and they’re keeping the pins in due to my neuropathy
I haven’t put any weight on that ankle yet because since I have no feeling in my feet and legs,except pins and needles,they’re afraid if I hurt my ankle,I won’t feel it.
I am in pain everyday in my feet.
There’s not one day that I’m pain free.
I usually take Tylenol along with the Tramadol 50mg, and it helps for a few hrs.
It seems whenever I have any kind of infection,it manifests in my ankles.
They will get shooting pains, for hours, and nothing helps it, even the Tramadol doesnt work.
My neurologist started giving me Rituxan infusions, supposedly to help with the pins and needles but I have only had a few of then, and don’t really feel any better.
Have a follow-up appt this week with my neurologist.