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Anyone taking Keppra for seizures?
Epilepsy & Seizures | Last Active: 4 hours ago | Replies (76)Comment receiving replies
A neurologist is treating me. When I had my tonic clonic seizure 2 yrs ago, they started me out on 500mg keppra 2x a day. A year later, I reduced that to once a day. I did have another less intense seizure the second year when I forgot to take my once a day pill. Thats when doctor explained the 12hr duration of keppra so I then did 250 2x a day. Then this year I started reducing further in Feb and was completely weened off very slowly by May. All these decisions were made by me and not my doctor. I informed him what I was doing. Of course, they can not recommend my planned path as they are afraid of the liability for them in the United States. They are more comfortable giving you pills even with side effects as that protects them in the courts. The patient has to make their own decisions and take their own CALCULATED chances. God Bless.
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Living with discomfort and pain can mess with our heads and make us want to do things that might not be the best choice. I've been there myself! Back in 2019-2020, when I was seeing general neurologists, I wanted many times to toss all my medications in the trash. Thank goodness my husband stopped me from doing this! Those doctors just followed the protocol in terms of medication dosage and were very resistant to reducing my dosage.
But, as I mentioned earlier, everything changed when I switched doctors and was treated by one with expertise in epilepsy.
I understand Keppra is the first medication you have been put on, correct? Perhaps Keppra isn't the best medication for you? It works well for some and not well for others. As my current doctor always says to me: every person and body is unique!
Have you considered having a second opinion, especially with an epileptologist?
Take care!
Chris