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@marione2000

Hi Lisa, thank you very much for your reply.
The neurologist who follows me confirms that it is a behavior compatible with hypnic headache, by standing and walking the pain quickly eases fortunately.
After years of trying to treat it with various drugs including the latest one called Quviviq (which I absolutely could not tolerate), he booked me for hospitalization to do a sleep study (unfortunately it takes a long time for this to happen). I would like to point out that before this drug I took another drug for a few years called Stilnox, which did nothing but delay the pain which was postponed until around 5/6 in the morning. Currently I have come up with a tactic: I set the alarm for 2 in the morning to force myself to wake up early on the headache, and then after about 20/30 minutes I go back to sleep. It may seem absurd but this helps me quite a bit.

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Replies to "Hi Lisa, thank you very much for your reply. The neurologist who follows me confirms that..."

I’m new to this site and believe I have Hypnic Headaches but none of the various Specialists have ever used that diagnosis. I didn’t realize anyone else was woken up at the same time in severe pain and had to get up. I cant lie on my pillow because it is too painful. Hence I get up, take oxycodone, eat a few
crackers, drink milk to protect my stomach and walk around. Often I’ll do very light tasks as the pain subsides. I’m up for 1-1:30hrs. Before I can lie on the soft pillow again.
I’m going to try the 100mg caffeine tablets instead of Oxy. How many is usually effective? Thanks