1. < Chronic Pain

Complex Regional Pain Syndrome

Posted by tiacanfield @tiacanfield, Mar 24 4:44pm

I have just been diagnosed with CRPS after a contusion to my heel bone that happened December 8, 2024. Since then I’ve seen numerous specialist. Running test after test on me. Sending me to physical therapy. Latest test was today, vascular Doppler, which came back normal. My foot at first was red, warm to touch and very swollen. After 8 days of that, December 16th, I noticed my foot was ice cold, burning, and almost had a purple/blue tint to it. Ever since then it’s become increasingly worse. The pain in my foot as now moved to my thigh. I forgot to mention I also have a 1.3cm hip labral tear with this contusion to my heel bone. I’m new to all of this. I don’t have many family members alive, the ones I do have don’t believe me. It’s exhausting. Oh, also, sorry I’m everywhere. I broke my wrist in 6th grade and had to have it desensitized and when I told the doctor this, his response was “hmm that’s so odd” so, what helps with the flares? Im on Gabapentin 900mg x3 daily and that’s not seeming to help anymore. I’m scheduled with pain management April 20 something. I’m needing support and encouragement. This is such a painstaking process to go through. The pain just keeps getting worse and my foot is ice cold most of the time.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

clucky | @clucky | 4 days ago

Ask your pain doctor about trying low dose naltrexone for your pain. You can read about conditions it helps at http://www.ldnresearchtrust.org

REPLY
geronimo87 | @geronimo87 | 4 days ago
In reply to @catukf "Hi Geronimo, Thank you so much for your reply — I can’t believe how alike our..." + (show)
@catukf

Hi Geronimo,
Thank you so much for your reply — I can’t believe how alike our stories are. It's really encouraged me to seek a second opinion. I actually tried to send you a direct message but couldn’t figure out how to do it.

I wanted to ask: do you think you have CRPS, or were your symptoms more related to the initial fracture and the surgery? How are you feeling now?

I worry that doctors can be quick to give a diagnosis without taking the time to thoroughly investigate things. I really appreciate hearing your experience. Looking forward to your reply.

Jump to this post

Hi Catukf,

I was ultimately diagnosed with CRPS, but I think the diagnosis will soon no longer apply since my most recent surgeon seems to have identified the underlying causes and operated to resolve them. I do believe that this diagnosis is often given out often when MDs can't identify the underlying cause(s) and without sufficient investigation.

I feel so much better now. My pain is 95% gone and I am gradually regaining my range of motion with the support of a really talented OT.

I will message you in case you'd like to chat further:)

REPLY
View MoreView Less
Please sign in or register to post a reply.