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DiscussionLiving with Neuropathy - Welcome to the group
Neuropathy | Last Active: 1 day ago | Replies (6475)Comment receiving replies
Replies to "I agree with you. What symptoms do you have?"
My symptoms started about 8 years ago with buttocks numbness and leg stiffness. When I walked it felt like I could not flex my legs or feet. In the ensuing years, I have hot feet and cold feet, and feet that feel that they are hot and cold but are not. (Copious amounts of B12 and wonderful microwaveable booties mitigate some of this.) Can't regulate my body temperature, especially at night when I'm trying to figure out what kind of cover to use. My overhead fan irritates the heck out of me these days. Muscle cramps, foot drop, pain at the end of my toes like wearing too small shoes, shooting pains in feet and hands, and my lower legs now feel like they are wrapped in cellophane. I even have the mysterious little wiggle that feels like a bug trapped beneath my skin. I am beginning to have more trouble walking. And more recently, I sometimes cannot lift my legs upon waking. Elsewhere on my body, I have indiscriminate numbness and tingling, especially on my face and everywhere my skin feels stretched. I mean, should you be aware of your body parts all the live long day? (Otherwise, I'm doing fine.) I have been on gabapentin for years, but my dosage is limited because too much causes fluid in lungs. I am also taking a muscle relaxer. Mostly, I rely on MJ because it is legal in my state and makes me just not care. Recently, I gave up sugar again because I'm a sugar addict, and inflammation has gone way down in just 4 days. However, none of this is a cure. My attempts for medical care led to me to a neurosurgeon who focused on my neck instead of my lower back and/or legs. After surgery (just 3 months post-op), I will have no further elective procedures. My neurosurgeon finally spoke the peripheral neuropathy words at my last visit, and I already knew I had peroneal neuropathy. But not a word about where to go from here, because sadly, there doesn't seem to be many places to go. So, my point is: we need more posts about coping and getting along instead of, in my opinion, the pointless pursuit of a diagnosis from which there is no cure.
I have PD also. Interested in seeing what symptoms you have.