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"Looking forward." Has PN taken that away from me, too?

Neuropathy | Last Active: 15 hours ago | Replies (55)

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@bjk3

Good afternoon, @ray666, @dbeshears1, @mob55, @julbpat, @liloldlady, and all who are blessed to find kindred souls here at Connect ~
I've been pondering this business of no longer looking forward to in-person celebrations, get-togethers, and other events that are mostly out of my ability to attend, and there are many! Boy, this topic certainly resonates with me! Like so many of you, in my younger years, I enjoyed some very fulfilling careers and also some extensive travel and really still could, if it weren't for the limitations of my long time and now severe P.N. and some unpredictable digestive tract surprises. 😜 As a lot of you know, in 2022 I experienced extensive lumbar surgery and then hip replacement (this latter from a fall 10 weeks after the back surgery). I spent several weeks in a new, lovely rehab facility which for all practical purposes was more like a luxury hotel because I was a "guest" (their word), not a "patient". Terribly and consistently understaffed, the one thing I LOOKED FORWARD to was getting home!! What I saw as interminable boredom turned out to be a gift from God. Because of that experience, I know that staying independent in my own home is a joyous freedom I look forward to every day. Sure, I have the occasional "blues" from weather changes or this-or-that. But I am content to look forward to keeping up my home, doing a bit of shopping, preparing (or not!) what I want (or don't want!) to eat, getting to set my own daily routine as to when I feel most like exercising, showering, eating, and taking medication when needed, as opposed to having to take it according to a precision-followed time-chart, with no say in the matter. I look forward to being able to maintain a decent social life, -- though mostly on Zoom -- because of aforementioned complications with mobility, etc. In living out this new normal, what I miss the most is the expectation/ability to be reliable and dependable, hence the option of Zoom as opposed to in-person gatherings. I live alone with my sweet lapdog (my husband passed 12 years ago) and I really respect you, Debbie, and you, Ray, for the loving presence that you maintain for the happiness of your husband and partner. You are gifting them the joy of looking forward to giving you outings, things to do, and understanding aid where needed so that you may do these things together. That's awesome for all involved!
Ok, to avoid extensive rambling, I'll wish all of you the very best as adjustments and more adjustments present themselves. I'm with you in it, and I sure appreciate our discussions, suggestions, and topics that come to be shared! Blessings!! ~ Barb

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Replies to "Good afternoon, @ray666, @dbeshears1, @mob55, @julbpat, @liloldlady, and all who are blessed to find kindred souls..."

Good morning, Barb

You've got me thinking. When I posted my "Looking forward" topic, it was because in my morning scribblings that day I was thinking about the emotional toll that PN exacts, damage to anticipation being one. This morning, for reasons unknown, my mind was dwelling on the word "purpose." I found myself asking the question –– and it can be a killer question (it is for me) –– "What is my 'purpose'?" I was having a difficult time coming up with a good answer, an answer I'd consider spirit-satisfying. I used to be able to answer that question by saying things like, "Oh, it's to learn my lines so I can give the audience a good show" or "Reorganize your plans for next month so that my partner and I can take that long trip we've been wanting to take" or "Set aside time this afternoon to visit or phone friends so I can be the 'good friend' I want to be." But what is my purpose these days? My life-with-PN days? It's "Don't be late for your appointment with Dr. G." and "Take all of your pills, even the ones that leave a nasty aftertaste" and "When you do your at-home leg-strengthening exercises, this time give-it-your-all!" All super-important purposes, no quarrel. But is that my overarching purpose now that I have PN? To be a medical aficionado? Nothing else? I find that terribly deflating. So, in finishing up this morning's scribbling I ended saying, "There's your purpose, Ray: it's to rebuild a purpose, a greater purpose than just doctors' appointments and leg raises. I was once more than that, and –– are you listening, PN? –– I will be again.

OK, climb back down from the soapbox, Ray. 🙂

Cheers to us all!
Ray )@ray666)