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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 day ago | Replies (6475)

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@bucksgal52

I agree with you. These posts should be less about the desperation of trying to get a diagnosis (what difference does it make what kind of neuropathy you have?) and more about how to cope with it? Personally, I have been announcing to my family that I do not have the psychological wherewithal to withstand this condition if it keeps progressing at its current rate. Nor do I want to be a burden or end up in a nursing home. From the looks on their faces, they either don't know what I'm saying or don't want to know what I'm saying.

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Replies to "I agree with you. These posts should be less about the desperation of trying to get..."

I agree with you. What symptoms do you have?

@bucksgal52
The Comments usually are from and about someone who is hurting.
We are free to express our frustration. When you have a life changing diagnosis with no cure, it can really spin you around.
I know exactly how that goes. In addition to having Polyneuropathy I was also diagnosed with Mild Cognitive Impairment MCI. I currently also have traits of Frontotemporal Dementia. No cure for that either. At 75, I am doing the best I can each day.

Have a beautiful day.