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@pled

I have had two MAC infections over the course of the last 13 years. Each time, I lost a considerable amount of weight and was not able to regain the full amount. I started that journey at about 134 lbs and lost 14 lbs. After 8 years I was back to 128. After the second infection in 2020, I went down to 114. I fought my way back to the 119-120 range but cannot seem to move above that. I'm 5'6" , so I feel like I am too thin. I try to eat healthy and snack whenever I feel the slightest bit hungry. I know MAC and bronchiectasis is different for everyone, but I think weight loss is just part of the package for many of us. My latest strategy has been to make a quart of ice cream once a week to share with my husband. Not exactly health food, but delicious and lots of fun!

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Replies to "I have had two MAC infections over the course of the last 13 years. Each time,..."

Thanks for sharing your experience. I was just diagnosed with MAC and the chest ct showed Bronchiectasis. I went from 152 to 135 and find my appetite much less. I had been told to not eat four hours before bedtime (acid reflux guess before the MAC diagnosis) and know that “fasting” made me lose weight too. I’d like to have an appetite back and no nausea from the three meds three times a week for a year. It is helpful to read everyone’s experiences and see that all our bodies are so different we have to figure it out for ourselves. So thank you for sharing…