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Am I disabled? Now what.

Epilepsy & Seizures | Last Active: 11 hours ago | Replies (18)

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@kb2014

I am not a victim. I have been seizure free over 11 + years. My paternal grandfather had a head injury had epilepsy and after I examined his death certificate he possibly died from SUDEP. I have agency over my life. I decide who and what is safe and healthy for me. I am not perfect but more than able to carry out treatment plans recommended by my doctors. I will say your post is rather offensive to me. I have no more to offer here.

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Replies to "I am not a victim. I have been seizure free over 11 + years. My paternal..."

I really appreciate your comment and perspective. This is great news for you and I am so happy to hear what you have experienced.

We are all different and our experiences are unique. I wish we all experienced the same responses to the meds like you have enjoyed. My epilepsy is resistant to meds and my Mayo doctors are still working on a way to mitigate my seizures.

Thanks for sharing your journey.

Please don't consider any post as being offensive. A car accident turned me from being productive to being a burden, instant case of dementia, there were times that I couldn't remember where I was or what I was doing. I needed someone with me 24 hours a day. It was a long road back to independence. A bad fall in October 2023 caused my seizures to come back with a vengeance. I refuse to let that send me back to the mental condition I was in 20 years ago. Stay strong!