I don't know if my words will help.
When I have had concerning health issues (or any problem), I have defended myself by learning as much as I can about the issue. It gives me some sense of control. Today with the Internet, without leaving home, one can find out many things in any area. Just use credible sources (organization, intuitions like Mayo). Little by little one begins to understand.
Perhaps you can locate other institutions and have your records sent there for their review. When I had abnormal CT scans I self-referred to Mayo. They reviewed my scans and then called me to offer an appointment. I didn't have to leave home until I had the appointment. Mayo also offers a lot of assistance to people travelling alone. There is always a volunteer with a wheelchair to take one around to appointments

My local Pulmonologist wanted to treat me, but I read my scan reports and knew I was dealing with lung cancer, and that was not her area of expertise. It is good to have another opinion. Realize Specialists have subspecialties.
Wishing the best for you