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@janspons

I am due to go to Mayo, Rochester, in Aug to get my jpouch scoped, and a couple other tests. I am having issues with night time incontinence, daytime is usually fine though have had a couple small accidents but seem to always have a pad/liner on these days. If I bulk up too much then I seem to feel nauseous, constipated & bloated. I have been curious about the implant types they have, or maybe a referral to a pelvic floor doc. I will be on medicare in July w/supplement plan (not advantage) so am hoping to get some answers. My incontinence seemed to come on kind of suddenly, and have had issues since November of 2023. My doc retired, so in 2023 the new one just said to go home and start doing pelvic/kegels, no med change or anything. Last fall I had another new doc, which I have been working with somewhat, no med change other than tried some suppositories, but they did nothing so I am winging it until I get there, one test is to check the strength of my spincter muscles that I have left, maybe they are shot? Keeping my fingers crossed that I can get something figured out. Wishing the best of luck to all of you all suffering from this frustrating disease.

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Replies to "I am due to go to Mayo, Rochester, in Aug to get my jpouch scoped, and..."

I had all the rectal test and failed some, not all. I also did pelvic floor PT and acupuncture for two years. Along with that I did visceral massage. She taught me how to do that nightly which I do almost always. I think I just have no natural movement left to my colon, it’s been so long. I’m never passing hard stool or needing to push feeling. I take so many laxatives followed by enemas in the morning it’s easy to pass if and when it does. It’s not often. I’ve had a lot of other surgeries and it seems you buy maybe 5 years if your lucky before scar tissue sets into the wrong places, age more and the pain just starts all over. I just don’t know if at 70, do I want to do it and deal with a bag. I’ll go for last opinion but in the end it’s still my decision . So much to consider. I wish you the best and hope August visit will have answers. It’s also a lot of flying for all the follow ups.