So you might be googling words that you don't understand, which for me was almost every word initially, and getting more and more frightened with each response? I might have needed a diaper and it wasn't from the cancer. It was from reading the reports and googling.

Let me share my approach that worked for me most of the time. I am a scared cancer patient, so I allow myself to be human. Pretending otherwise proved to be counter productive. You seem to have the most important part covered by having a NET specialist from a Cancer Center of Excellence. For me, I needed that to trust the treatment process. Also, when you google stuff, only read search results from those centers of excellence. I picked three and didn't read results from anywhere else. Why fill my head with possibilities that can't be delivered at this time or are just comical. Do homework and be prepared for your doctor's appointment. Have a list of questions prepared, but let the doctor talk first. Over time, I have found that most of my questions get answered, if I let the doctor talk first. I cross those off and ask any remaining questions. My doctors really appreciated that. It immediately built rapport and made the appointments conversational and friendly even the tough conversations. That made a big difference for me.

We are all different. Our approaches are different. Our bodies are different, so treatments that work will be different. Be prepared for that. Cancer isn't a friendly foe unfortunately. You folks might have hit a bump in the road, but now the battle continues. Are you preparing for the appointment? Do you have a list of questions? What else is really scaring you folks?