1. < Neuroendocrine Tumors (NETs)

Captem

Posted by susan481 @susan481, 3 days ago

If first scan shows interval progression while on lanreotide only, is captem the next step? Seeing doctor Monday)

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kevinmonroemi | @kevinmonroemi | 3 days ago

It seems to be! That’s what I had I have similar type pancreatic primary metatastic to the liver

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susan481 | @susan481 | 3 days ago
In reply to @kevinmonroemi "It seems to be! That’s what I had I have similar type pancreatic primary metatastic to..." + (show)
@kevinmonroemi

It seems to be! That’s what I had I have similar type pancreatic primary metatastic to the liver

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Thanks!

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zacharycat | @zacharycat | 3 days ago

Lots of ways you could go. I had Folfox through a chemo port (6 cycles) then PRRT (4 rounds), back on lanreotide only for a while, then distal pancreatectomy, now on cabozantinib. As they say lots of tools on in the toolbox but they still may run out at some point.

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susan481 | @susan481 | 3 days ago
In reply to @zacharycat "Lots of ways you could go. I had Folfox through a chemo port (6 cycles) then..." + (show)
@zacharycat

Lots of ways you could go. I had Folfox through a chemo port (6 cycles) then PRRT (4 rounds), back on lanreotide only for a while, then distal pancreatectomy, now on cabozantinib. As they say lots of tools on in the toolbox but they still may run out at some point.

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Thanks for the reminder there are loads of options! Appreciate your openness

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