Chemo and cancer recurrence

Posted by prc73 @prc73, May 9 5:02pm

Hello all. So my oncotype test came back at 49 with a distant chance of recurrence of 38percent in 9 years. My margins where clear no lymph involved. Mastectomy. My k67 was 35-45. I did have LVI on tumor. I'm ER+PR+Her2negative. Oncologist wants me to do at least 4 rounds chemo before endocrine therapy. They will also be doing scan etc for bones etc just in case. I guess I just want to hear about chemo . Did anyone have cancer come back or have distant cancer after chemo and endocrine therapy?

Interested in more discussions like this? Go to the Breast Cancer Support Group.

@chrisbomstad

Hi: my only side effect was a little neuropathy in my feet and I was icing my hands, head and feet at all 12 treatments. Now I am on 4 rounds of Doxorubicin every 3 wks apart. Just finished #2. I’ve lost my eyelashes and my hair is starting to shed. I hope this helps. @chrisbomstad

Jump to this post

Thank you so much. I will definitely look into the ice treatments too. All suggestions help and I feel at times the natural remedies do help. Who knew about the ice right?

REPLY
@phonso

Oncotype 43. Lumpectomy. Margins and lymph nodes clear. k67 73%. Had 4 Chemo treatments of Cyclo and Doce. 21 Radiation. Now on Anastrazole. I am 75 and active. All percentages bring me to about 90% in 10 years according to AI. I am 2 years out and most recent tumor markers are consistently 11 and MRI negative. Frankly, I thought chemo would kill me :). All told, I think I have had the best treatment they know of and continue in remission. Oh, and tumor size was small, 11 mm. or 1.1 Cm. I try to eat my fruits and veggies, exercise 3 times a week, keep my weight with a BMI of 21. Given the tumor was small but agressive I continue to have concerns, but really think I made all the right decisions. The mental is the worst part of this disease, believe it or not. I read articles that say they are looking intently into the PTSD factor that has been largely in the background but very real. Hope this helps

Jump to this post

Hi!
You mention tumor markers.
Can you please elaborate or what exactly this is?
Thanks!

REPLY
@h0wardsh

Hello. First, giving all honor and glory to God. Bc without Him, I would not be here or be able to stand strong through this battle.
I was on docetaxel. First, let me say, everyone is different and will have different experiences with medication. It was the worse for me. I lost my nails, they all fell off. Not trying to scare anyone, but this was my experience. All nails turned black, toes and fingers. I developed neuropathy. I had a few mouth sores, but the worse was the neuropathy and nails falling off. If I think of anything drastically different than your regular hair loss, nausea, fatigue, etc. I will let you know. I’ve learned that we have to help the body fight and recover with natural remedies as much as possible bc the chemo kills not only the cancer cells but the healthy parts of the body as well. If we don’t help the body build itself back up, we lose it.

Jump to this post

Also you speak of natural remedies. Is there something that may have helped you alleviate side effects after chemo

REPLY

Diagnosed 4/2023 grade 2 idc. K67 25, oncotype +, hr+, her2- lumpectomy, stage 1a. Chemo because of the positive oncotype. Did Taxotere and cytoxan. Complete loss of hair (warned before) but it has grown back. Did get neuropathy in legs and feet that hung on for a while - dr suggested alpha lipoic acid which helped immensely so only residual is mild neuropathy left foot. Most damaging for me was mouth - did get sores, ulcers, swollen gums and lips, teeth moved (I felt that one when I yawned one day, weird feeling), loss of taste. Taste has never returned for the most part. Still get some residual sores but they heal quickly with antibacterial mouthwash. Did have 6000.00 worth of dental work done - broken teeth, loose fillings etc that I feel were secondary to the chemo and possible enhanced with ai therapy because none of it showed up right after the chemo but was present a year later. I’m still very tired but that could be due to the combination of chemo, radiation and exemestane. So, overall the chemo wasn’t bad, side effects mostly went away.

REPLY

Yes, after 21 years and in the other breast. I am, once again, on Aromasin.

REPLY
@mistymar

Diagnosed 4/2023 grade 2 idc. K67 25, oncotype +, hr+, her2- lumpectomy, stage 1a. Chemo because of the positive oncotype. Did Taxotere and cytoxan. Complete loss of hair (warned before) but it has grown back. Did get neuropathy in legs and feet that hung on for a while - dr suggested alpha lipoic acid which helped immensely so only residual is mild neuropathy left foot. Most damaging for me was mouth - did get sores, ulcers, swollen gums and lips, teeth moved (I felt that one when I yawned one day, weird feeling), loss of taste. Taste has never returned for the most part. Still get some residual sores but they heal quickly with antibacterial mouthwash. Did have 6000.00 worth of dental work done - broken teeth, loose fillings etc that I feel were secondary to the chemo and possible enhanced with ai therapy because none of it showed up right after the chemo but was present a year later. I’m still very tired but that could be due to the combination of chemo, radiation and exemestane. So, overall the chemo wasn’t bad, side effects mostly went away.

Jump to this post

Thank you so much. Especially knowing chemo wasn't that bad on side effects

REPLY
Please sign in or register to post a reply.