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Anybody here have chronic constipation & pelvic floor dysfunction?
Digestive Health | Last Active: Jun 14 5:53am | Replies (48)Comment receiving replies
I had a total colectomy at the Mayo Clinic in Rochester after literally months and months of testing there. I had a Nissen fundoplication 360 at JHU & unfortunately the surgeon decided to perform the surgery by hand bc the robot wasn’t working & I wish I hadn’t had the surgery. In addition to damaging my vagus nerve I also ended up with gastroparesis, slow intestinal transit, a wrap that was so tight I couldn’t swallow my own salvia, & the worst chronic constipation I have ever had (there were times I didn’t have a BM for a month). After years of agony & having the head of GI at Johns Hopkins call me a conundrum I flew out to Rochester. It was the doctors there who diagnosed me with vagus nerve damage, gastroparesis, Slow intestinal transit, & told me that my colon had been dying/shutting down over the years and now it was dead. I was nervous when I was told I needed a total colectomy but also relived that there was a reason why I felt like & looked like crap and that they had solution. My only regret was not going to Mayo sooner
Replies to "I had a total colectomy at the Mayo Clinic in Rochester after literally months and months..."
When you have time can you discuss what happens in the hospital. Did you end up with a bag. I was going to get one. I’m nervous about tube in my nose for days. I hate them yet I was told it’s put in while you’re sleeping.
Did you experience a lot of weight loss. I’m thin at 70 and that worries me. Will I easily understand how to change the bag. I don’t want to end of confined to my home. How old were you when you did it.
I so much appreciate you answering all my questions but please understand if I’ve asked to much just tell me.
Yes, the doctors in Boston went over everything for a long time but a patient is so different. Many thanks, Joanne
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Wow, I have gastroparesis as well. I’m so scared. I didn’t do it in Boston in 2020 age 65, now I live in Georgia and I’m 70. I’m in the middle of removing top teeth for dentures with implants because it has all caused severe decay to my upper teeth. You would never know looking at them.
I hate the entire mess but I live on so much laxatives that my gastrointestinal here says before push comes to shove Mayo has the best procedure.
Can you tell me about your surgery and what you felt was the hardest part. If you are comfortable with sharing. Thanks so much your story is inspiring to me.