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Is anybody dealing with an angiosarcoma?

Posted by amyqueenof4 @amyqueenof4, Sep 4, 2022

Is anybody dealing with an angiosarcoma? My fiancé is 48 and was diagnosed in January. It has been in two different locations already.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 19 5:55pm
In reply to @lim21 "My father was diagnosed with angiosarcoma at the beginning of this year. He went to the..." + (show)
@lim21

My father was diagnosed with angiosarcoma at the beginning of this year. He went to the doctor because of extensive blood in his stool. They ran many ct scans and MRI’s.
The surgeon at the hospital found a decent sized tumor in his rectum. It was removed and within 1 week “sprinkles” of cancer/tumers were found around surgery site.

His hemoglobin levels has been extremely low the entire time he has been going through this. He has had over 40 units of blood since January 3rd of this year. Doctors have told us he will require blood transfusions weekly because he is constantly going low. No signs of blood buildup anywhere found in body.

He is hooked to tpn for nutrition through iv because he cannot eat with blockage.

CT scans now showing spreading into abdominal wall, pelvis pushing on bladder?, and spot in lung. He also has an obstruction so he has a gtube inserted into his stomach to relieve fluids/stool.

This is all new to us so I’m trying to understand the doctors as best as possible.

He started radiation treatment this week. They are doing 5 sessions. He has 2 down and 3 to go.

I don’t know what to expect and I hope he is in the best care. This has happened so quickly and I have faith we will beat the odds. I wish I would have found this site before now.
Any advice or thoughts please share. I’m so sorry you all have had to go through these things. It is very hard on me and I’m just his son.

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Hi @lim21, it sounds like your father is getting attentive care. Is he being treated at a major cancer center? How is he doing with radiation?

REPLY
viola | @wiola | Mar 28 4:09pm

Hi,
I was diagnosed (this February) with angiosarcoma of liver that is spread within the liver. About to start paclitaxel. Curious what chemo didn't work for you and what immunotherapy did work. I'm also connected to NW in Chicago (we probably see the same oncologist there), but am going for second opinion at MDAnderson.

REPLY
1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 6 3:13pm
In reply to @wiola "Hi, I was diagnosed (this February) with angiosarcoma of liver that is spread within the liver...." + (show)
@wiola

Hi,
I was diagnosed (this February) with angiosarcoma of liver that is spread within the liver. About to start paclitaxel. Curious what chemo didn't work for you and what immunotherapy did work. I'm also connected to NW in Chicago (we probably see the same oncologist there), but am going for second opinion at MDAnderson.

Jump to this post

@wiola, have you started treatment? How are you doing?

REPLY
thisfatoldlady | @thisfatoldlady | Jun 13 10:30am

It's very rare. My cousin was just diagnosed with it when they removed a bleeding mass from her breast (where she had radiation treatment for breast cancer 4 years ago). She doesn't use the computer much and doesn't like to deal with medical stuff so I'm trying to be an advocate for her. Waiting to hear if the margins from the surgery are positive or negative.

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