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RAI Treatment

Thyroid Cancer | Last Active: Jun 16, 2025 | Replies (19)

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Rockon79,

When was your surgery? Synthroid (and it's generic) levels are usually leveled out in your body 6 - 8 weeks after any change was made to them. So, if you just started on .125, expect to have your medication tested in 4 weeks at the earliest and 6-8 weeks after for more certainty. I remember that once my medicine was off (after 25 years I can just feel when it is off now) and of course I wanted a quick fix. Sadly it took many months of adjusting to right the right dose again. I guess my point is that patience (which I do not have!) if essential with thyroid cancer maintenance because so much of it is waiting.
I was first diagnosed at 26. It came back in more lymph nodes at 27 and again at 28. I am now 53 and there are still nodules in my neck that we "watch and wait".
Hope that helps.

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Replies to "Rockon79, When was your surgery? Synthroid (and it's generic) levels are usually leveled out in your..."

Good to know. Apparently what I am going through is S.O.P for thyroid cancer. Since that is the case, it seems that I should have been provided with some generic guidance as to what to expect after thyroid removal. That hasn't been my experience, until now anyway.