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Thanks @jeffmarc !
I’m 3 weeks out from surgery. 1st RO meeting is June 23, 1st MO meeting is July 16. They told me I have to wait at least 3 months for adjuvant radiation, but I will be asking these doctors about ADT and according to what you and others have written, and from what I have read, I should be on ADT for 2 years. Any other recommendations? By the way, not looking forward to ADT but am being aggressive to fight the PCa that I have. I don’t expect the doctors to push back, but who knows? Do you think they will prescribe Eligard, Lupron or Orgovyx?
Also, do ADT drugs work for Gleason 4+5=9 ? When you say those others got metastasis in a short time, how short? And did they have distant Mets to the bone or local lymph nodes?
Thanks!!
Replies to "Thanks @jeffmarc ! I’m 3 weeks out from surgery. 1st RO meeting is June 23, 1st..."
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Yes, the ADT drugs work for your 4+5, Though you would think they would want to put you on Zytiga or one of the lutamides. If they discussed putting you on a second drug, tell them you want Nubeqa (Darolutamide) which has the least side effects of that group of drugs. If they say you can go on Zytiga Then do that, It has some more side effects and if you have heart issues, you do not want to take it. These are all things to discuss with that doctor.
Yes, with Gleason 9 the recommended NCCN time for ADT is 24 months.
Now let’s talk about Eligard, Lupron or Orgovyx. You could not ask them, and tell them you want Orgovyx. It’s the most convenient and you can stop at any time since you take it once a day as a pill. If you cannot get it and they want to give you one of the other two, You tell them you want to have a Casodex Prescription for two weeks before you get that injection. Otherwise, you get a testosterone flare and it can mess up your system and your cancer. Your doctor should know about this. Make sure you ask.
The other choices they could give you Firmagon, Which is shot you get in the stomach. It’s like Lupron And the others it just doesn’t need Casodex first.