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Anyone out there with Thymoma/Thymic Carcinoma
Cancer | Last Active: Sep 3, 2023 | Replies (136)Comment receiving replies
Hi @gailkattouf, I know this is tough. My dad also didn't want any information about his condition. He didn't want to know about possible side effects. He just wanted to deal with the ones he got. For him knowledge wasn't power. For me it is. At times I understood and at other times I didn't. It was hard to swallow when he didn't want to help himself. Anger was also something I had to deal with. Luckily he threw that anger only at me and not my mom. Thus we divided the roles of mom took care of dad and I took care of mom. Still it was hard to witness.
Gail, is the plan to keep going with the Keytruda treatment?
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No more Keytruda. He is home on hospice. I believe the pneumonitis has taken its’ toll and a sudden massive disease progression left us no alternatives. We were all shocked. Even at 85 he is not prepared to die and we had such good early results so we thought. We prayed we would make it to point where would be able to get Keytruda. I am not sure if the massive and sudden distal disease progression was hyperprogression from immunotherapy or just a nasty aggressive cancer.
My dad had things he was looking forward to. We were planning an each trip but he is too weak. My mom is devastated. My sister and I are loving and supporting them both as they need it.
I am hoping the spiritual counselor will help us reframe our perspectives and we can stop crying. We value life, celebrate health and have gratitude for all the 84 years of amazing living. It’s been a beautiful ride for my dad with plot twist he never could have imagined.