Everyone with Peripheral Neuropathy

I agree with you on that. Doctors would rather just go on treating symptoms. I find that even during visits their language is guarded and there is very little empathy with patients. It is almost as if they have been programmed--perhaps part of their training? Sometimes doctor visits become more anxiety-producing than seeking out alternatives. We have to be our own best advocates. There are researchers behind the scenes doing vital research. We must keep our eyes and ears open for those endeavors.

The off and on burning sensations have ceased. Night time numbness in feet is greatly diminished, leg cramping is less often and balance seems better. It has done nothing for the arthritis in my joints and I did not expect it to,

Are there alternatives to gabapentin? I erupted in hives the last time it was prescribed for me.

At this time you cant 'cure' it and anyone telling you that is trying to sell you a bill of goods...BUT...you can stop its progression and feel better. Its all getting it under control, diet plays a big part in it I have found. Many foods just make it worse, you gotta put yourself first. I am 70 and for the first time in my life I am putting myself first and taking care of me. Good luck.

My husband is in cybersecurity for department of defense. He could look at setting us up some kind of website. For example what triggers your neuropathy and what helps. We would have to be careful of so called spammers that claim to have neuropathy that don’t. That is a problem with the Facebook neuropathy page. We could somehow come up with the money to get the domain registered with federal domain registry. Then the website would be legitimate. According to my husband the cost of registering the domain isn’t really that expensive we could have to come up we a name. I wonder if Dr Anne Oaklander has looked into that? She is a research neurologist for neuropathy. They have a data base of people’s nerves for research purposes. People from different countries can access the data base for research purposes. That have small fiber neuropathy.

Setting up the website is not the problem. Maintaining and monitoring is a big expense and not sure it's worth it from my experience with setting up and maintaining websites. There are many different reputable neuropathy websites but it can be a challenge to find information and sort through it. Here are the ones I've found and used:

-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
-- Neuropathy Commons: https://neuropathycommons.org/patient-support/nonprofits-support-groups
-- Neuropathy Action Foundation: http://www.neuropathyaction.org/index.htm
-- Hereditary Neuropathy Foundation: https://www.hnf-cure.org/

There has been a great deal of literature on the role of diet in dealing with neuropathy. One physician even claims a strict diet can even cure it. Besides the obvious culprit sugar, can you tell me what foods do you find that help or exacerbate it? I will add exercise as a suggestion for dealing with this condition.

Just checking in to see if it helped with numbness in hands/feet. How long did you take it before you noticed improvement?
Thanks for all the info,
Leicia

I have trigeminal neuralgia. Pain stopped with cabamazepine which is similar to gavapentine. Stopped cabamazepine because of it's low term side effects. Now taking turmeric one capsule morning and night. No pain.

Alcohol is poison to the 30 ft long intestine. It causes billions of pores in its internal wall to close,preventing nutrient absorption. Fortunately they open when booze has gone. B12 renews nerves insulation, myelin. However, most seniors have too little B12 because our stomach has 30 % less acid. Stop alcohol and take B12 daily. Go for it.
82 NZ