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Anyone out there with Thymoma/Thymic Carcinoma
Cancer | Last Active: Sep 3, 2023 | Replies (136)Comment receiving replies
Yes lost some hearing to tinnitus and neuropathy in the feet. However the immunotherapy Nivolomab ( opdivo ) is on a trial at the Marsden ( London ) for B3 and thymic cancer. The details are available on line. So far so good for many of my inoperable tumours had 6 fortnightly cycles so far and reduced some tumours by 25% which I feel is remarkable as chemo did little in the way of reduction. N
Replies to "Yes lost some hearing to tinnitus and neuropathy in the feet. However the immunotherapy Nivolomab (..."
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Nick. I found the trial details on the website. It says the locations are Belgium, Spain and Switzerland, with no mention of UK? Are you a UK resident and hence receiving treatment there or you have to travel to UK from the US? Do you know if it can be done remotely say in Australia?
Did your oncologist recommend this trial to you? When I asked our oncologist here about target therapy or new drug, he told us there was nothing. I'm amazed to find the trials on the website supplied in the previous discussions. I'm so thrilled people are sharing info in this forum. When my hubby first got sick in 2014, I tried to find info but could not locate any! Thanks everyone for sharing, Val