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Anyone out there with Thymoma/Thymic Carcinoma
Cancer | Last Active: Sep 3, 2023 | Replies (136)Comment receiving replies
My sister is recently diagnosed with 85% "possible" Thymoma. She just finished 6 rounds of chemo for her lymphoma (diffuse B-Cell, very aggressive stage 4) last year and during the follow-up scans, they discovered the growth in her thymus. 2 biopsies were inconclusive but the senior and supposedly very knowledgeable pathologist reported that judging from the cells and surrounding conditions, he is fairly sure it is thymoma. The thoracic surgeon recommends the removal of thymus (thymoma). We are hoping for a 2nd or even 3rd opinion, but according to my research, thymectomy with large margin is still the most popular solution. Anyone know any doc/hospital we can turn to for a creative 2nd opinion?
Replies to "My sister is recently diagnosed with 85% "possible" Thymoma. She just finished 6 rounds of chemo..."
@tsphere and @adribunny, welcome to Connect.
Tsphere, should you wish to seek a second opinion at Mayo Clinic, here is the contact information: https://www.mayoclinic.org/appointments
You can self refer or ask your doctor to make the referral. Might Mayo Clinic be a possibility for you?
Adribunny, several members have talked about a paralyzed diaphragm and damaged phrenic nerve. Is this what happened to you?
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I was 37 when i was diagnosed with thymoma. First doctors told me that it may be lymphoma. After 2 biopsies I was 3 stage. They didn't know much only that it was rare that elderly and newborns are more likely to get it. After the removal I started my radiation. 7 days I was done with I got pneumonia. At the time I received the worst news ever. The doctors that performed my removal went to deep & cut a nerve and it paralyzed my right lung. I now have have of my left lung. My life has changed completely. Sorry to ask but how old is your sister?